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Find Health Data

The Cancer Registry

The Cancer Registry (CAR) is an incidence register containing details of new cases of cancer in Denmark since and including 1943. The registry also has details about the date of diagnosis, anatomic...
DATA OWNER Danish Health Data Authority
PRIMARY VARIABLES Age | Anatomical localisation | Cancer diagnosis | Cancer type | CPR No. | Date of birth | Diagnosis | Gender | Municipality of residence | Spread of the disease within the first four months of diagnosis date

Danish Ocular Oncology Database

The Danish Ocular Oncology Database covers patients with choroidal melanoma, retinoblastoma and orbital cancer. The purpose of the DOOG database is to register all cases of cancer in the region of ...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Cause of death | CPR No. | Familial cancer | Gender | Lymph gland status | Metastases | Metastases | Plaque type | Radiation treatment | Region | Symptoms | TNM classification | Tumour data | Tumour localisation | Tumour size

Danish Bladder Cancer Database

The Danish Bladder Cancer Database (DaBlaCa) is a national clinical quality database containing data about patients with bladder cancer. The aim of DaBlaCa is to gather data on patients with bladde...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Charlson comorbidity index | Chemotherapy | Comorbidity | CPR No. | Cystectomy | Gender | TNM classification | TURB stage | Vital status

Danish Renal Cancer Database

The Danish Renal Cancer database (DaRenCa) is a nationwide clinical quality database that contains information about diagnosis and treatment of patients with renal cancer. The main aim of DaRenCa i...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Admission/discharge | Age | Blood tests | Comorbidity | CPR No. | Diagnosis | Fuhrman grade | Gender | Leibovich score | Oncological treatment | Operation - data | Postoperative mortality | pT stage | Radiation treatment | Stage | TNM classification | Treatment | Vital status

The Danish Pancreatic Cancer Database

The Danish Pancreatic Cancer Database (DPCD) is a national clinical database for patients with pancreatic cancer. The database currently covers data on clinical aspects and treatment to patients wi...
DATA OWNER The Region of Southern Denmark
PRIMARY VARIABLES Cancer diagnosis | Charlson comorbidity index | Chemotherapy | CPR No. | Gender | ICD10 diagnosis code | Metastases | Municipality of residence | Operation - data | Treatment | Tumour data | Tumour localisation

Danish Sarcoma Database

The Danish Sarcoma Database (DSD) is a national clinical quality database that contains data on malignant connective tissue tumours and benign tumours, aggressive fibromatosis and giant cell bone t...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Age | Cause of death | Charlson comorbidity index | Chemotherapy | Comorbidity | Complications | Date of death | Functional level | Gender | ICD10 diagnosis code | Malignity level | Metastases | Morphology | Musculoskeletal Tumour Society Scoring System (MSTS) score | Operation - data | Postoperative data | Radiation treatment | Radiological examination | Radiological examination | TNM classification | Tumour data | Tumour localisation | Tumour size

Danish Head and Neck Cancer Database

The Danish Head and Neck Cancer Group, DAHANCA, is a national quality database. All cases of squamous cell cancer of the mouth, throat and larynx, squamous and glandular cell cancer of the nose and...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Cancer stage | Cause of death | Chemotherapy | CPR No. | Diagnosis | Radiation treatment | Region | Treatment status | Tumour localisation

Danish Clinical Database of Carcinomas of the Esophagus, Cardia and Stomach

The Danish Clinical Database of Carcinomas of the Esophagus, Cardia and Stomach (DECV) is a national clinical quality database aimed at monitoring, developing and providing best, uniform quality in...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Anastomosis | ASA Physical Status Classification System | Barrett's oesophagus | Biopsy | Cancer diagnosis | Complications | Date of birth | Gender | Grading | Height | Histological classification | Incision | Intervention | Leakage | Non-operative procedure | Operation - data | Referral | Resection | Smoking | Status (dead/alive) | Systemic treatment | Treating hospital /department | Treatment | Tumour data | Tumour localisation | Tumour size | Weight

Danish Testicular Cancer Database

The Danish Testicular Cancer database (DaTeCa) is a nationwide clinical quality database that contains detailed information on more than 300 variables relating to histology, stage, treatment, recur...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES AFP count | Biopsy | Carcinoma in situ | CNS metastases | CPR No. | Date of birth | HCG count | LDH count | Metastases | Operation - data | Pineal gland | Radiation dose | Treatment | Vital status

Danish Breast Cancer Group

The Danish Breast Cancer Co-operative Group (DBCG) has administered a treatment database since 1978 that collates data on demographics, diagnostics, treatment and follow-up on breast cancer. This h...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Age | Anti-HER2 therapy | Bilateral breast cancer | Chemotherapy | Comorbidity | Contralateral breast cancer | CPR No. | Diagnosis | Endocrine therapy | ER status | HER status | Menopause status | Metastases | Operation - data | Other malignant disease | Previous malignant disease | Radiological treatment | Relapse | Tumour size

Danish Gynaecological Cancer Database

The Danish Gynaecological Cancer Database (DGCD) is a national multidisciplinary clinical quality database that gets reports from gynaecologists, pathologists, oncologists and nurses. The aim of DG...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Alcohol consumption | BMI | Cancer diagnosis | Cancer metastasis | Comorbidity | CPR No. | Gynaecological history | Height | International Federation of Genecology and Obstetrics (FIGO) stage | Metastases | Mobilisation | Nutritional status | Operation - data | Pain score | Predisposing factors | Pre-operative physical findings | Resection | Risk of malignancy index (RMI) | Smoking | Treatment | Tumour data | Tumour localisation | Tumour size | Vital status | Weight | WHO Performance Status Score

The Danish Cancer Biobank

The Danish Cancer Biobank (DCB) is a national collaboration between departments dealing with blood and tissue samples from cancer patients and contains data relating to these samples. The primary a...
DATA OWNER Danish Regions
PRIMARY VARIABLES Blood | Tissue

Danish Childhood Cancer Registry

The Danish Childhood Cancer Registry (DBCR) is a national clinical quality database collating data on all children with carcinomas and benign CNS tumours, germ cell tumours, endocrine tumours and h...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Bacterial anaemia | Cancer diagnosis | Cause of death | CPR No. | Diagnosis | Follow-up data | Metastasis localisation | Other malignant disease | Participation in international studies | Relapse | Treatment | Treatment with central venous catheter

The Danish National Acute Leukemia Registry

The Danish National Acute Leukemia (ALD) is part of the haematological common database under the Danish Haematological Society. ALD gathers data on patients being treated for malignant haematologic...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Bone marrow blast % | Cancer diagnosis | Cause of death | Chemotherapy | Classification of bone marrow | CPR No. | Cytogenetic examination | Diagnosis | FAB classification | First name(s) | Gender | Height | ICD10 diagnosis code | Lactate-dehydrogenase level | Metastases | No. leukocytes | Peripheral blood blast count | Relapse | Thrombycytes | Transplant | Treatment | Weight | WHO Performance Status Score

Danish National Lymphoma Registry

The Danish National Multiple Myeloma Registry (LYFO) is a clinical quality database and part of the Hematological Common Database. LYFO contains data about patients with malignant lymphoma (lymph c...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Age | Anaemia | Ann Arbor stage | B symptoms | Calcium | Cause of death | Chemotherapy | CPR No. | Creatine | Date of death | Discordant lymphoma | ECOG performance status | FISH abnormalities | Gender | Haemoglobin count | ICD10 diagnosis code | LDH count | Leukocyte count | Lymph sub-types | Paraclinical findings | Radiological examination | Thrombocyte count | Treatment | Tumour data | Tumour localisation | Tumour size | WHO Performance Status Score

The Danish National Multiple Myeloma Registry

The Danish National Multiple Myeloma Registry (DaMyDa) is a clinical quality database and part of the Hematological common database. DaMyDa collects clinical data on newly diagnosed patients with m...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Age | Amyloidosis | Bone fracture | Bone marrow plasma | Calcium | Cause of death | CPR No. | Creatine | Cytogenetics | Date of death | Diagnosis | FISH abnormalities | Gender | Haemoglobin count | ISS stage | Karyotype | LDH count | Leukocyte count | M component | Medullary compression | Municipality of residence | Paraclinical findings | Plasma cell % in bone marrow | P-M component | Polyneuropathy | Radiological examination | Thrombocyte count | U protein | WHO Performance Status Score

The Danish Prostate Cancer Database

The Danish Uro-Oncology database (DaProCa) is a nationwide clinical quality database containing data about diagnosis and treatment of patients with prostate cancer. DaProCas main aim is to improve...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Age | Alcohol consumption | Cardinal symptoms | Charlson comorbidity index | Comorbidity | CPR No. | Date of birth | Gleason score | Height | Metastases | Primary tumour | Prostate volume | pT stage | Sexual function | Smoking | TNM classification | Treatment | Vital status | Weight

The Danish national penile cancer quality database

The Danish National Penile Cancer database (DaPeCa) is a nationwide clinical quality database containing data about diagnosis and treatment for patients with penile cancers. DaPeCa is aimed at mon...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Cardinal symptoms | Chemotherapy | Complications | CPR No. | Date of death | Glans amputation | HPV test | Lymph gland status | Metastases | Operation - data | Surgical treatment | TNM classification | Treatment | Tumour localisation | Vital status

Danish Colorectal Cancer Group Database

The Danish Colorectal Cancer Group Database (DCCG) is a national clinical quality database that has been gathering data on patients with primary colorectal cancer. The database also includes data o...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Alcohol consumption | ASA Physical Status Classification System | Cancer metastasis | Complications | CPR No. | Date of death | Diagnosis | Height | Heritability | Metastases | Operation - data | Radiological examination | Risk factors | Smoking | TNM classification | Tumour data | UICC stage | Weight | WHO Performance Status Score

Danish Melanoma Database

The Danish Melanoma Database (DMD) is a national clinical quality database gathering data on Danish patients with birthmark cancer (cutaneous melanoma) and precursors to birthmark cancer on the ski...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES 5 year survival | Age | Age at diagnosis | Biopsy | Cause of death | Clinical stage | Date of death | Gender | Melanoma - type | Operation - data | Primary tumour | Sentinel lymph gland biopsy | Surgical treatment | TNM classification | Treating hospital /department | Tumour data | Tumour data | Tumour localisation | Tumour size

Danish Lung Cancer Registry

The Danish Lung Cancer Registry (DLCR) is a national clinical database that gathers data on patients being treated for lung cancer. The database makes it possible to document clinical activity and ...
DATA OWNER The Region of Southern Denmark
PRIMARY VARIABLES Age | Cancer diagnosis | Charlson comorbidity index | Chemotherapy | Comorbidity | Complications | CPR No. | Diagnosis | Diagnosis | European Organisation for Research and Treatment of Cancer (EORTC) score | Functional level | Gender | Histological classification | Lung function | Oncological treatment | Operation - data | Patient-reported outcome measures | Quality of life | Radiological treatment | Stage | Symptoms | TNM classification | Tumour data | Vital status

Danish Non-melanoma Skin Cancer Dermatology Database

The Clinical Database for Non-melanoma Skin Cancer (NMSC) is a nationwide clinical quality database that covers treatment procedures and control of non-melanoma skin cancer in specialist dermatolog...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Clinical diagnosis | CPR No. | Metastases | Skin cancer history | Treatment | Tumour data | Tumour localisation | Tumour size

National integrated cancer pathways

Monitoring the cancer package process is done by the Danish Health Data Authority and shows whether the recommended cancer pathway times are being complied with. Monitoring is based on 33 different...
DATA OWNER Danish Regions
PRIMARY VARIABLES Care pathway period | Diagnosis confirmed/unconfirmed | Investigation period | Referral period | Total treatment time

Danish National Chronic Myeloid Neoplasia Registry

The Danish National Chronic Myeloid Neoplasia Registry (DMPN) is a clinical quality database and part of the Haematological Common Database. DMPN gathers data on patients treated for chronic myoloi...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Age | Bone marrow blast % | Calcium | Cardiovascular risk factors | Cause of death | Comorbidity | CPR No. | Creatine | Date of death | Diabetes | Dizziness | Erythromelalgia | Gender | Haemoglobin count | Headache | Hypercholesterolemia | Hypertension | ICD10 diagnosis code | Increased tendency to sweat | Leukocyte count | Microvascular symptoms | MPD-related bleeds | Musculoskeletal genes that may relate to MPD | Necrosis | Paraclinical findings | Pronounce itching | Smoking | Thrombocyte count | Thrombosis | Unintended weight loss | Visual disturbances

Danish Database - Chronic lymphocytic leukemia

The Danish National Chronic Lymphatic Leukemia Database (CLL) is a clinical quality database and part of the Hematological Common Database. CLL contains data about chronic lymphatic leukaemia. The ...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Age | Anamnestic familial CLL | Bone marrow biopsy | Cause of death | Chemotherapy | CPR No. | Date of birth | Date of death | Fatigue | Fever | FISH abnormalities | Gender | ICD10 diagnosis code | IgVH mutations | LDH count | Lymphocyte count | Paraclinical findings | Radiological examination | Symptoms | Transplant | Weight loss | WHO Performance Status Score

Danish Liver Cancer Group

The Danish Liver Cancer Group Database (DLGCD) is a national clinical quality database covering data from patients with suspected hepatocellular carcinoma (HCC), cholangiocarcinoma (CC) colorectal ...
DATA OWNER The Region of Southern Denmark
PRIMARY VARIABLES Cancer diagnosis | Child Pugh score | Comorbidity | CPR No. | Diagnosis | Metastases | Surgical treatment | Treatment

Danish Quality Database for Cervical Cancer Screening

The Danish Quality Database for Cervical Cancer Screening (DKLS) is a national clinical quality database containing information about cell samples registered in the Pathology Data Bank. The samples...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Age | Cancer diagnosis | CPR No. | Diagnosis | HPV test following ASCUS diagnosis | Municipality of residence | Vital status

Danish Quality Database for Breast Cancer Screening

The Danish Quality Database for Breast Cancer Screening (DKMS) is a national clinical quality database containing information about mammography screening of women in Denmark. The aim of DKMS is to ...
DATA OWNER Central Denmark Region
PRIMARY VARIABLES Cancer diagnosis | Cancer diagnosis | CPR No. | Identified cancer | Lymph gland status | Region | Screening - result | Screening - date | Tumour size

Danish Quality Database for Colon Cancer Screening

The Danish Quality Database for Colon Cancer Screening (DTS) includes data on participation, screening results, follow-up examinations – colcoscopy, colcoscopy results, etc. The aim of DTS is to fo...
DATA OWNER The Capital Region of Denmark
PRIMARY VARIABLES Adenoma size | Age | Coloscopy - data | CPR No. | Findings | Gender | Grading | Intestinal cancer stage | Invitation sent | Laboratory data | Region | Reminder | Result | Sigmoidoscopy data | Tumour localisation | Vital status

Danish Neuro-oncology Registry

The Danish Neuro-oncology Registry (DNOR) is a national clinical quality database that records data on primary brain tumours in adults in Denmark . The main purpose of the database is to gather dat...
DATA OWNER The Region of Southern Denmark
PRIMARY VARIABLES Chemotherapy | Cognitive effect | CPR No. | Cytostatics regime | Dropout symptom | Epileptic seizure | Headache | ICD10 diagnosis code | MRI characteristics | Municipality of residence | Operation - data | Radiation data | Tumour data | Tumour localisation | Tumour size

Diet, Cancer and Health

The Danish Cancer Society's biobank was established in 1993 as part of the "Diet, Cancer & Health" project - one of the largest ever Danish population studies to date. This database holds informat...
DATA OWNER Danish Cancer Sociey
PRIMARY VARIABLES Cancer | Diet | Lifestyle