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DATA PRESENTATION

ADHD Database

DATABASE

Primary variables


ADHD diagnosis

Child's age

Child's gender


Introduction

The ADHD database (ADHD) encompasses all patients under 18 registered and diagnosed for the first time with ADHD (Attention Deficit Hyperactivity Disorder) in a Danish paediatric and adolescent psychiatric unit. The indicators are on selected procedure codes registered in the National Patient Register (LPR) as part of an examination.

ADHD is based on conversion of the Childhood and Adolescent Psychiatric Database which has been collating data since 2000 for all patients referred by paediatric and adolescent psychiatric units. A decision was taken in 2011 to disband BupBase and instead set up the ADHD database as a disease-specific database. It has been gathering data since 2013.

More details

Abbreviation
ADHD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients under the age of 18 in Denmark being treated for ADHD at a paediatric or adolescent psychiatric department, either admitted or as outpatients and regardless of the severity and number of previous diagnoses of ADHD
Database Categories

Application requirements

The Regional Clinical Quality Databases

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Region of Southern Denmark
Contact data owner
Regionshuset
Damhaven 12
7100 Vejle
Website - data owner
bit.ly/region-of-southern-denmark
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Lea Grey Haller
T: 21 52 59 08
E: LEHALL@rkkp.dk
Website - data administrator
bit.ly/rkkp-adhd-databasen