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DATA PRESENTATION

Ablation.dk - clinical database

DATABASE

Primary variables

ADHD diagnosis

Child's age

Child's gender



Introduction

The National Danish Ablation Database ”Ablation.dk” is a nationwide database for catheter-based ablation for cardiac arrhythmia in Denmark, which was initiated by the arrhythmia working group under the Danish Society of Cardiology (DCS), in which it is anchored. The aim of the database is to provide quality assurance for ablation treatment in Denmark, with a special focus on atrial fibrillation.

Ablation is a catheter-based treatment in which the cells that cause arrhythmia in the heart are removed/cauterised, thus removing the arrhythmia. The database holds information on all percutaneous catheter-based ablation of tachycardia at the five public Danish centres and one private centre that carry out ablation in Denmark. In order to ensure satisfactory data quality, a decision was made to cross-batch data reported to the National Patient Register and Ablation.dk from and including 2014.

Ablation.dk covers all types of tachycardia treated with ablation techniques such as AVnodal re-entry tachycardia (AVNRT), ectopic atrial tachycardia (EAT), accessory pathways, typical/atypical atrial flutter, ventricular extrasystole/tachycardia and atrial fibrillation and His ablation.

More details

Abbreviation
DARD:DK
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises patients who have had ablation for atrial fibrillation
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Application for data access is sent to the board of the database
  • After approval the application is forwarded to the contact person of the database
  • The contact person controls that the application is complete
  • If the application is complete the applicant must accept the terms of extradition if data (a written acceptance is sent via e-mail to the contact person)
  • The application is sent to data manager
  • Approval and extradition of data
  • within 30 days after data delivery the applicant must control the data extraction and afterwards it should be deleted

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Birgitte Rühmann
T: 26 34 78 09
E: BIRRUH@rkkp.dk
Website - data administrator
bit.ly/ablation-klinisk-database