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DATA PRESENTATION

The Danish Clinical Register of Emergency Surgery

DATABASE

Primary variables


CPR No.

Municipality of residence

First name(s)

Gender

Height

Weight

Date of birth

Alcohol consumption

Smoking

Pulse

Blood pressure

ASA Physical Status Classification System

Other chronic conditions

Ulcer-related medication usage

Status (dead/alive)

Cause of death

Bleeding/perforation - type


Introduction

The Danish Clinical Register of Emergency Surgery (AKD) is a national clinical quality database covering: (1) acute bleeding ulcer and (2) perforated ulcer. The database was established under the National Indicator Project (NIP) in 2004 with the aim of monitoring care and treatment of the above-identified patient groups and reports come from all hospitals dealing with them.

A range of prognostic factors are registered, including smoking, alcohol consumption, ulcer-related medication usage and a range of chronic diseases, pulse and blood pressure, ASA-score, height, weight, bleeding/perforation type, anaesthesia and possibly cause of death.

The completeness of individual variables on individual patients are often calculated and are generally close to 100% with the exception of records of blood pressure and pulse, time/date for antibiotic treatment and BMI (where 14-35% is missing).

More details

Abbreviation
AKD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists all patients >=18 admitted or transferred from another hospital with acute clinical problems by way of either bleeding gastroduodenal ulcer (verified by gastroscopy) or perforated gastroduodenal ulcer (verified by operation)
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Annette Ingeman
T: 21 68 75 83
E: ANNING@rkkp.dk
Website - data administrator
bit.ly/akut-kirurgi-databasen