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DATA PRESENTATION

COP-Spine

DATABASE

Primary variables

 

List of variables not avaliable for download

Introduction

COP-Spine is a quality and research database for patients with back pain. The purpose of the COP-Spine database is to follow patients with back pain. The database helps give patients and doctors an overview of the condition's pathway and the efficacy of the treatment given to individual patients.

The database operates at rheumatology departments in the Capital Region and Køge.

More details

Type
Regional clinical quality database
Purpose
Scientific research, Clinical quality

Collection Period

Collection Period
Coverage
Regional
Population
The population comprises spinal patients in the Capital Region and Køge
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Application for data access is sent to the board of the database
  • After approval the application is forwarded to the contact person of the database
  • The contact person controls the application
  • If the application is complete the applicant must accept the terms of extradition of data (a written acceptance is sent via e-mail to the contact person)
  • The application is sent to data manager
  • Approval and extradition of data
  • within 30 days after data delivery the applicant must control the data extraction and afterwards it should be deleted

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
Competence Center for Clinical Epidemiology & Biostatistics – East (KCEB-East)
Contact data administrator
Monika Madsen
T: 51 15 41 58
E: monika.madsen.01@regionh.dk
Website - data administrator
bit.ly/cop-spine