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DATA PRESENTATION

Danish Head and Neck Cancer Database

DATABASE

Primary variables


Cancer stage

Cause of death

Chemotherapy

CPR No.

Diagnosis

Radiation treatment

Region

Treatment status

Tumour localisation

Introduction

The Danish Head and Neck Cancer Group, DAHANCA, is a national quality database. All cases of squamous cell cancer of the mouth, throat and larynx, squamous and glandular cell cancer of the nose and sinuses, cancer of the salivary glands, thyroid cancer and cancer assumed to originate in these regions are registered in the database.

Patients are registered in the database following their first visit to a head and neck oncology unit or after MDT. Registration includes all patients offered curative and palliative treatment with surgery, radiotherapy or chemotherapy/biological treatment, as well as patients not offered treatment.

Characteristics are registered from the time of diagnosis, primary treatment, treatment outcomes and selected parameters for morbidity so as to quantify and do quality assurance on diagnostics and treatment of these diseases in Denmark.

More details

Abbreviation
DAHANCA
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of patients with newly diagnosed cancer of the oral cavity, salivary glands, throat, larynx, nasal sinus, thyroid and lymph nodes of the throat which are listed in the database
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Inge Bundgaard Øster
T: 21 68 76 68
E: INGOEE@rkkp.dk
Website - data administrator
bit.ly/dahanca