Vi bruger cookies til statistik som en del af vores arbejde for at lave en god hjemmeside. Medmindre du siger "nej tak til cookies", antager vi, at du accepterer vores cookie-politik. For mere information, se vores "cookie-politik".

Du kan også klikke "ja tak til cookies" for at  acceptere vores cookie-politik

DATA PRESENTATION

Danish Stroke Registry

DATABASE

Primary variables


Admission/discharge

Alcohol consumption

Anaesthesia

Blood pressure

Cause of death

Civil status

Comorbidity

CPR No.

CT scan

Date of birth

Ergotherapist - opinion

Gender

Height

Location of blood clot

Modified Rankin Scale Score

MR scan

NIH Stroke scale/score (NIHSS)

Nutritional assessment

Physiotherapist - opinion

Scandinavian Stroke Scale (SSS) score

Screening for dysphagia

Smoking

Stroke type

Treatment

Type of housing

Weight

Introduction

The Danish Stroke Registry (DAP) is an interdisciplinary national clinical quality base aimed at improving the quality of treatment of patients with acute stroke and transient ischaemic attack in Denmark. DAP is based on data entered on DAP's KMS database platform and data from the CPR Register and the National Patient Register.

DAP was established in 2003 since when more than 120,000 patient processes have been reported, making it a valuable source of data for elucidating and developing the quality of early diagnosis, treatment, care and rehabilitation of patients with acute stroke and TIA in Denmark.

More details

Abbreviation
DAP
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients aged over 18 with acute stroke or transient ischaemic attack (TIA) hospitalised for short or lengthy stays
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Annette Ingeman
T: 21 68 75 83
E: ANNING@rkkp.dk
Website - data administrator
bit.ly/dansk-apopleksiregister