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DATA PRESENTATION

Danish Bladder Cancer Database

DATABASE

Primary variables


Charlson comorbidity index

Chemotherapy

Comorbidity

CPR No.

Cystectomy

Gender

TNM classification

TURB stage

Vital status

Introduction

The Danish Bladder Cancer Database (DaBlaCa) is a national clinical quality database containing data about patients with bladder cancer. The aim of DaBlaCa is to gather data on patients with bladder cancer and monitoring the quality of treatment for this patient cohort. DaBlaCa only includes patients with invasive tumours of the bladder, i.e. bladder cancer.

All patients from and including 2012 with hospital contact and newly diagnosed bladder cancer and also with a relevant pathological diagnosis of bladder cancer are included in the database. Data primarily comes from existing registers: The National Patient Register (LPR), Danish Pathology Register (PR), CPR Register and to a limited extent, the database's own reporting system.

More details

Abbreviation
DaBlaCa
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients with a first diagnosis of bladder cancer listed in the National Patient Register (LPR) and Pathology Register. Patients with replacement CPR numbers are not included in the database
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Inge Bundgaard Øster
T: 21 68 76 68
E: INGOEE@rkkp.dk
Website - data administrator
bit.ly/daproca-prostatacancer
Website - data administrator
bit.ly/blaere-cancer-database