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DATA PRESENTATION

Danish Breast Cancer Group

DATABASE

Primary variables


Age

Anti-HER2 therapy

Bilateral breast cancer

Chemotherapy

Comorbidity

Contralateral breast cancer

CPR No.

Diagnosis

Endocrine therapy

ER status

HER status

Menopause status

Metastases

Operation - data

Other malignant disease

Previous malignant disease

Radiological treatment

Relapse

Tumour size

Introduction

The Danish Breast Cancer Co-operative Group (DBCG) has administered a treatment database since 1978 that collates data on demographics, diagnostics, treatment and follow-up on breast cancer. This has more recently been supplemented with data on diagnostics and treatment of the precursors to breast cancer and data on familial history of breast or ovarian cancer.

The database was set up in 1976 on the initiative of the Danish Surgical Society so as to monitor and improve the quality of diagnosis and treatment of patients with breast cancer, regardless of geographic location, and hence improve prognoses.

More details

Abbreviation
DBCG
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of patients (women) diagnosed with invasive breast cancer. Patients with previously diagnosed invasive breast cancer are not included and neither are males diagnosed with invasive breast cancer
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Maj-Britt Jensen
T: 38 66 02 62
E: mj@dbcg.dk
Website - data administrator
bit.ly/dansk-brystkraeft-database