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DATA PRESENTATION

Danish Clinical Database of Carcinomas of the Esophagus, Cardia and Stomach

DATABASE

Primary variables


Anastomosis

ASA Physical Status Classification System

Barrett's oesophagus

Biopsy

Cancer diagnosis

Complications

Date of birth

Gender

Grading

Height

Histological classification

Incision

Intervention

Leakage

Non-operative procedure

Operation - data

Referral

Resection

Smoking

Status (dead/alive)

Systemic treatment

Treating hospital /department

Treatment

Tumour data

Tumour localisation

Tumour size

Weight

Introduction

The Danish Clinical Database of Carcinomas of the Esophagus, Cardia and Stomach (DECV) is a national clinical quality database aimed at monitoring, developing and providing best, uniform quality in diagnosing and treating patients with cancer of the oesophagus, cardia and stomach.

Primary data reporting is from five highly specialised centres (Aalborg University Hospital, Aarhus University Hospital, Odense University Hospital, Gentofte Hospital and Copenhagen University Hospital).

The database was established in 2003 and various major revisions of the database have occurred since then (2006, 2010, 2012) and oncological data has only been systematically reported since 2013. Since 2012 the database has provided >=99% completeness for all relevant patients.

More details

Abbreviation
DECV
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients with newly diagnosed carcinoma of the oesophagus, gastro-oesophageal junction or ventrical, i.e. patients with cancer of the oesophagus, cardia and stomach
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Sofia Møller Kyndesen
T: 20 35 64 26
E: SOFKYN@rkkp.dk

Website - data administrator
bit.ly/decv-database