The Danish Clinical Database of Carcinomas of the Esophagus, Cardia and Stomach (DECV) is a national clinical quality database aimed at monitoring, developing and providing best, uniform quality in diagnosing and treating patients with cancer of the oesophagus, cardia and stomach.
Primary data reporting is from five highly specialised centres (Aalborg University Hospital, Aarhus University Hospital, Odense University Hospital, Gentofte Hospital and Copenhagen University Hospital).
The database was established in 2003 and various major revisions of the database have occurred since then (2006, 2010, 2012) and oncological data has only been systematically reported since 2013. Since 2012 the database has provided >=99% completeness for all relevant patients.
- Nationwide clinical quality database
- Clinical quality
- The population consists of all patients with newly diagnosed carcinoma of the oesophagus, gastro-oesophageal junction or ventrical, i.e. patients with cancer of the oesophagus, cardia and stomach
- Database Categories
The Regional Clinical Quality Databases
Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.
Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.
Furthermore, The Danish Data Protection Agency must approve the project.
- Apply via research access (Danish: forskeradgang), an online application system
- Submit the protocol to The Danish Clinical Registries (RKKP)
- RKKP registers the application
- The application is forwarded to the relevant clinical database
- Potential dialog about adjustment to the protocol
- Approval and extradition of data (expected 6 months after application)
The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.
- Data owner
- The Capital Region of Denmark
- Contact data owner
Kongens vænge 2
- Website - data owner
- Data administrator
- The Danish Clinical Registries (RKKP)
- Contact data administrator
Sofia Møller Kyndesen
T: 20 35 64 26
- Website - data administrator