Vi bruger cookies til statistik som en del af vores arbejde for at lave en god hjemmeside. Medmindre du siger "nej tak til cookies", antager vi, at du accepterer vores cookie-politik. For mere information, se vores "cookie-politik".

Du kan også klikke "ja tak til cookies" for at  acceptere vores cookie-politik

DATA PRESENTATION

Danish Gynaecological Cancer Database

DATABASE

Primary variables


Alcohol consumption

BMI

Cancer diagnosis

Cancer metastasis

Comorbidity

CPR No.

Gynaecological history

Height

International Federation of Genecology and Obstetrics (FIGO) stage

Metastases

Mobilisation

Nutritional status

Operation - data

Pain score

Predisposing factors

Pre-operative physical findings

Resection

Risk of malignancy index (RMI)

Smoking

Treatment

Tumour data

Tumour localisation

Tumour size

Vital status

Weight

WHO Performance Status Score

Introduction

The Danish Gynaecological Cancer Database (DGCD) is a national multidisciplinary clinical quality database that gets reports from gynaecologists, pathologists, oncologists and nurses. The aim of DGCD is to form part of quality assurance and the development of pathoanatomical assessments and the surgical, nursing, chemo/radiological treatment of gynaecological cancer in Denmark.

DGCD covers all patients in Denmark diagnosed after 1 January, 2005 with either ovarian, corpus or cervical cancer and has been operating nationally since 2005. Data is notified via the Clinical Measurement System (KMS), and cross-batched with data from the National Patient Register, Cause of Death Register, Pathology Register and the CPR Register.

More details

Abbreviation
DGCD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of patients with ovarian cancer (incl. borderline) and cancer of the Fallopian tubes, peritoneum, endometrium (incl. atypical)), cervix, trophoblast, vagina and vulva
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application) 

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Ane Birgitte Telén Andersen
T: 29 45 94 15
E: ANEBBA@rkkp.dk

Website - data administrator
bit.ly/dgcg-forside
Website - data administrator
bit.ly/dgc-database