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DATA PRESENTATION

The Danish HIV Database

DATABASE

Primary variables

 

List of variables not avaliable for download

Introduction

The Danish HIV database (DANHIV) is a clinical quality database containing data about patients with HIV in Denmark. The aim of DANHIV is to monitor whether medical treatment of HIV patients leads to the expected reduction in HIV virus and a decline in illness and death rates associated with HIV.

DANHIV was set up as a regional clinical quality database in the Capital Region in the summer of 2015, although the project had been serving as the Danish HIV Cohort Study (DHK) since 1998. DHK has mostly been a research database but has also served as a resource for data for elucidating treatment quality.

In Denmark, HIV treatment is organised with one central treatment centre in each region (although two in the Capital Region). The database is based on direct data entry on the Access Database and data is cross-batched with the CPR register, National Patient Register and the regional LABKA databases.

More details

Abbreviation
DANHIV
Type
Nationwide clinical quality database
Purpose
Clinical quality, Scientific research

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises patients with HIV (ICD-10 codes: DB20-24)
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Application for data access is sent to the board of the database
  • After approval the application is forwarded to the contact person of the database
  • The contact person controls the application
  • If the application is complete the applicant must accept the terms of extradition of data (a written acceptance is sent via e-mail to the contact person)
  • The application is sent to data manager
  • Approval and extradition of data
  • within 30 days after data delivery the applicant must control the data extraction and afterwards it should be deleted

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Sofia Møller Kyndesen
T: 20 35 64 26
E: SOFKYN@rkkp.dk
Website - data administrator
bit.ly/dansk-hiv-database
Website - data administrator
bit.ly/rkkp-danhiv