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DATA PRESENTATION

Danish Heart Registry

DATABASE

Primary variables


Acute/elective

Age

BMI

Civil status

Comorbidity

Coronary Artery Disease (CAD) severity

CPR No.

European System for Cardiac Operative Risk Evaluation (euroSCORE)

Gender

Height

Municipality of residence

No. arteries treated

No. lesions treated

Operation data

Previous heart operation

Procedure codes

Smoking

Status (dead/alive)

Treating hospital /department

Valvular operation

Vital status

Weight

Introduction

The Danish Registry (DHR) is a national clinical quality database for collating medical and administrative data on patients aged over 15 referred for invasive cardiology procedures and heart surgery. Every invasive procedure is described using 60-70 unique variables covering demographic characteristics, prognostic factors, operation data and procedure-related complications.

The data is gathered so as to follow investigative and therapeutic measures for different groups of patients, to form the basis for evaluating the quality of treatment, to follow the development of treatment quality over time, to compare treatment quality between departments and to be a source of data for medical research.

The data comes from five cardiology centres, eight cardiology satellite centres, four surgical centres and a private hospital. DHR holds data back to 2000 but only the data from 2003 is regarded as complete and reasonably valid.

More details

Abbreviation
DHR
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all adults over the age of 15 with ischaemic cardiac disease and/or valvular disease who undergo one or more of the following invasive procedures: coronary angiography (KAG), coronary artery balloon angioplasty (PCI), bypass operation (CABG), heart valve surgery
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Anne Nakano Jensen
T: 21 68 76 88
E: ANNJES@rkkp.dk
Website - data administrator
bit.ly/karbase
Website - data administrator
bit.ly/dansk-hjerteregister