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DATA PRESENTATION

Danish Heart Failure Registry

DATABASE

Primary variables


Age

Alcohol consumption

Comorbidity

COPD

CPR No.

Diabetes

Diagnosis

Echocardiography

Gender

Hospital contact point (in/outpatient)

Hypertension

Myocardial infarction

New York Heart Association (NYHA) classification

Patient training

Smoking

Treatment

Introduction

The Danish Heart Failure Registry (DHD) is a clinical quality database covering patients initially registered with heart failure diagnosed as an outpatient or during hospitalisation. DHD also includes information about echocardiography, medical treatment, re-admission and mortality rates. Furthermore, DHD includes demographic data and data on alcohol consumption and smoking habits.

DHD is aimed at monitoring and improving the quality of treatment and care for all patients in Denmark with cardiac insufficiency. Data rerportiong units are departments/units or cardiological outpatient/heart failure clinics undertaking primary treatment and control of heart failure patients. This includes all departments that have been assessed and set up as data-reporting departments for DHD heart failure.

The database has been operating nationally since 2003 and data is currently reported via the Clinical Measurement System (KMS) and cross-batched with data from the CPR Register and the National Patient Register.

More details

Abbreviation
DHD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all adults of 18 or more with first admission or first outpatient contact with the primary diagnosis of heart failure
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Danish Regions
Contact data owner
Dampfærgevej 22
2100 København Ø
Website - data owner
bit.ly/danish-regions
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Anne Nakano Jensen
T: 21 68 76 88
E: ANNJES@rkkp.dk
Website - data administrator
bit.ly/dansk-hjertesvigt-database