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DATA PRESENTATION

Danish Head Trauma Database

DATABASE

Primary variables


Age

Child's mother tongue

Communication difficulties

CPR No.

Early Functional Abilities (EFA) score

Education/work pre-trauma

Ergotherapy treatment

Functional Independence Measure (FIM) score

Functional Oral Intake Scale (FOIS) score

Gender

Glasgow Coma Scale (GCS) score

Height

Housing type pre-trauma

Injury mechanism

Institution pre-trauma

Mental functions limitations pre-trauma

Neuropsychology treatment

No days admission for HS rehabilitation

Other diagnosis indication treatment

Parents' social group

Physical function limitations pre-trauma

Physiotherapy treatment

RLAS score

Speech therapy treatment

Weight

Introduction

The Danish Head Trauma Database (DHD) is an interdisciplinary, national clinical quality database which contains data about treatment and rehabilitation of children and adult patients severe traumatic brain injury during hospitalization and outpatient follow up.

DHD is aimed at monitoring and improving neural rehabilitation for patients with severe traumatic brain injury. Patients are treated at regional neurosurgical units (or similar abroad) and then admitted to highly specialised neuro-rehabilitation (HS rehabilitation) at the Regional Hospital Hammel Neurocenter (RHN) or at Copenhagen University Hospital, Clinic for Highly Specialised Neuro-rehabilitation/Traumatic Brain Injury (RNR).

More details

Abbreviation
DHD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population covers all patients (children from age 1 and adults) admitted for highly specialised neuro rehabilitation following severe traumatic brain damage
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Application for data access is sent to the board of the database
  • After approval the application is forwarded to the contact person of the database
  • The contact person controls the application
  • If the application is complete the applicant must accept the terms of extradition of data (a written acceptance is sent via e-mail to the contact person)
  • The application is sent to data manager
  • Approval and extradition of data
  • within 30 days after data delivery the applicant must control the data extraction and afterwards it should be deleted

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Annette Ingeman
T: 21 68 75 83
E: ANNING@rkkp.dk

Website - data administrator
bit.ly/dansk-hovedtraume-database