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DATA PRESENTATION

The Danish Intensive Care Database

DATABASE

Primary variables


Age

Charlson comorbidity index

Comorbidity

Continual renal replacement therapy (CRRT)

CPR No.

Gender

ICU data

ICU mortality

Intensive treatment

Municipality of residence

Patient type

Respirator treatment

Simplified Acute Physiology Score (SAPS) II score

Ventilation data

Introduction

The Danish Intensive Care Database (DID) is a clinical quality database containing information about the incidence and results of intensive care. The purpose of DID is to assess the extent to which treatments and treatment outcomes meet expectations.

Intensive care covers observation, diagnostics, treatment and care of patients with potentially reversible failure of one or more organ systems of such severity that it cannot be undertaken in a normal hospital department.

All intensive care departments in Denmark routinely report data on intensive pathways via the local patient administration systems to the National Patient Register, from where DID obtains its data. Cross-batched with the CPR Register, the database has been operating nationally since 2008.

More details

Abbreviation
DID
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all intensive admissions
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Birgitte Rühmann
T: 26 34 78 09
E: BIRRUH@rkkp.dk
Website - data administrator
bit.ly/dansk-intensiv-database