Vi bruger cookies til statistik som en del af vores arbejde for at lave en god hjemmeside. Medmindre du siger "nej tak til cookies", antager vi, at du accepterer vores cookie-politik. For mere information, se vores "cookie-politik".

Du kan også klikke "ja tak til cookies" for at  acceptere vores cookie-politik

DATA PRESENTATION

Danish Colorectal Cancer Group Database

DATABASE

Primary variables


Alcohol consumption

ASA Physical Status Classification System

Cancer metastasis

Complications

CPR No.

Date of death

Diagnosis

Height

Heritability

Metastases

Operation - data

Radiological examination

Risk factors

Smoking

TNM classification

Tumour data

UICC stage

Weight

WHO Performance Status Score

Introduction

The Danish Colorectal Cancer Group Database (DCCG) is a national clinical quality database that has been gathering data on patients with primary colorectal cancer. The database also includes data on operations, radiological and oncological treatment and a range of pathological variable.

The aim of DCCG is to improve the prognosis for patients with colorectal cancer, also by optimising and unifying diagnostics, surgical and oncological treatment of this group of patients. Reporting to DCCG is done using the Clinical Measurement System (KMS), supplemented with data from the National Patient Register, the Pathology Register and the CPR Register.

More details

Abbreviation
DCCG
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of patients with a first case of colorectal cancer treated at a public hospital in Denmark with a registered process in a surgical department or who have been treated by a surgical department while admitted to another department. Patients with cancer of the appendix or anus are not included in the database
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Mette Roed Eriksen
T: 29 24 68 09
E: MEEERI@rkkp.dk
Website - data administrator
bit.ly/dkc-database