The Danish Colorectal Cancer Group Database (DCCG) is a national clinical quality database that has been gathering data on patients with primary colorectal cancer. The database also includes data on operations, radiological and oncological treatment and a range of pathological variable.
The aim of DCCG is to improve the prognosis for patients with colorectal cancer, also by optimising and unifying diagnostics, surgical and oncological treatment of this group of patients. Reporting to DCCG is done using the Clinical Measurement System (KMS), supplemented with data from the National Patient Register, the Pathology Register and the CPR Register.
- Nationwide clinical quality database
- Clinical quality
- The population consists of patients with a first case of colorectal cancer treated at a public hospital in Denmark with a registered process in a surgical department or who have been treated by a surgical department while admitted to another department. Patients with cancer of the appendix or anus are not included in the database
- Database Categories
The Regional Clinical Quality Databases
Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.
Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.
Furthermore, The Danish Data Protection Agency must approve the project.
- Apply via research access (Danish: forskeradgang), an online application system
- Submit the protocol to The Danish Clinical Registries (RKKP)
- RKKP registers the application
- The application is forwarded to the relevant clinical database
- Potential dialog about adjustment to the protocol
- Approval and extradition of data (expected 6 months after application)
The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.
- Data owner
- The Capital Region of Denmark
- Contact data owner
Kongens vænge 2
- Website - data owner
- Data administrator
- The Danish Clinical Registries (RKKP)
- Contact data administrator
- Mette Roed Eriksen
T: 29 24 68 09
- Website - data administrator