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DATA PRESENTATION

Danish Quality Database for Cervical Cancer Screening

DATABASE

Primary variables


Age

Cancer diagnosis

CPR No.

Diagnosis

HPV test following ASCUS diagnosis

Municipality of residence

Vital status

Introduction

The Danish Quality Database for Cervical Cancer Screening (DKLS) is a national clinical quality database containing information about cell samples registered in the Pathology Data Bank. The samples come from women who (1) have been invited and attend the screening program; (2) have taken ad hoc tests outside the screening program and (3) have cell tests done to follow up on treatment for precursors to cervical cancer.

DKLS is aimed at monitoring and improving the quality of the Danish cervical cancer screening program. DKLS has been gathering data since 2009 and all pathology departments analysing cervical cell samples report to the database. The cervical cancer screening program is open to all women aged 23-65: screening is offered to women aged 23-49 at three year intervals and at five year intervals for women aged 50-65.

More details

Abbreviation
DKLS
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises women with Danish CPR numbers aged 23-65
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Ane Birgitte Telén Andersen
T: 29 45 94 15
E: ANEBBA@rkkp.dk

 

Website - data administrator
bit.ly/livmoderhalskræftscreening-database