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DATA PRESENTATION

The Danish National Quality Database for Births

DATABASE

Primary variables


Admission/discharge

Breast feeding

CPR No.

Date of birth

Diagnosis

Fetal age

Live/dead birth

Skin-to-skin contact

Treating hospital /department

Weight

Introduction

The Danish Quality Database for Births (DKN) is a national database covering treatment of all infants with a gestational age (GA) > 22+, and defined in the neonatal period as up to 44 weeks post menstrual age, and to monitor survival for up to 12 months after birth.

DKN is aimed at elucidating the quality of care and treatment for all newly born infants born in Danish hospitals with respect to improving and unifying the clinical quality of care and treatment of sick newborn infants born in Denmark.

Based on data from the National Patient Register (LPR) and the Central Personal Register (CPR), DKN is newly started and reporting began in November 2016.

More details

Abbreviation
DKN
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationvide
Population
The population consists of all newly born infants admitted to a hospital for paediatric treatment in Denmark during the neonatal period, defined as up to 44 weeks post-menstrual age
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Annette Odby
T: 21 68 75 70
E: ANNODB@rkkp.dk
Website - data administrator
bit.ly/nyfødte-database