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DATA PRESENTATION

Danish Liver Cancer Group

DATABASE

Primary variables


Cancer diagnosis

Child Pugh score

Comorbidity

CPR No.

Diagnosis

Metastases

Surgical treatment

Treatment

Introduction

The Danish Liver Cancer Group Database (DLGCD) is a national clinical quality database covering data from patients with suspected hepatocellular carcinoma (HCC), cholangiocarcinoma (CC) colorectal live rmetastases (KRLM) referred to the Liver Multidisciplinary Team (LiverMDT).

DLGCD is intended to promote and ensure uniform, evidence-based examination and treatment and to improve the quality of the treatment of patients with hepatocellular carcinoma, cholangiocarcinoma and colorectal liver metastasis in Denmark.

DLGCD was established in 2011, with data reporting starting in October 2013. Data is based on direct data entry into DLGCDs Topica database platform and data from the CPR register.

More details

Abbreviation
DLGCD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises patients referred to the Liver Multidisciplinary Team (Liver MDT), diagnosed with hepatocellular carcinoma (HCC), cholangiocarcinoma (CC) or liver metastases from colorectal cancer (KRLM). In the future the plan is to include patients referred to Liver MDT diagnosed with liver metastases from all other types of cancer than KRLM
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Region of Southern Denmark
Contact data owner
Regionshuset
Damhaven 12
7100 Vejle
Website - data owner
bit.ly/region-of-southern-denmark
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Monika Madsen
T: 51 15 41 58
E: MONIMS@rkkp.dk
Website - data administrator
bit.ly/dlgcd