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DATA PRESENTATION

Danish Melanoma Database

DATABASE

Primary variables


5 year survival

Age

Age at diagnosis

Biopsy

Cause of death

Clinical stage

Date of death

Gender

Melanoma - type

Operation - data

Primary tumour

Sentinel lymph gland biopsy

Surgical treatment

TNM classification

Treating hospital /department

Tumour data

Tumour data

Tumour localisation

Tumour size

Introduction

The Danish Melanoma Database (DMD) is a national clinical quality database gathering data on Danish patients with birthmark cancer (cutaneous melanoma) and precursors to birthmark cancer on the skin (melanoma in situ).

DMD is aimed at improving the quality of treatment and treatment outcomes by way of nationwide registration of data relating to epidemiology, pathology, clinical examination, treatment and follow-up. The purpose of the database is therefore to form the basis for guidelines for diagnostics, examination and treatment of disease (DMCG).

More details

Abbreviation
DMD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwdie
Population
The population consists of Danish patients with cutaneous melanoma (birthmark cancer) and the precursors to melanoma in situ
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Sofia Møller Kyndesen
T: 20 35 64 26
E: SOFKYN@rkkp.dk
Website - data administrator
bit.ly/dansk-melamom-database