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DATA PRESENTATION

Danish Palliative Care Database

DATABASE

Primary variables


Age

Cause of death

Children

Civil status

Civil status

Confusion Assessment Method (CAM) score

CPR No.

Date of birth

Date of death

Diagnosis

European Organisation for Research and Treatment of Cancer (EORTC) score

Gender

ICD10 diagnosis code

Municipality of residence

Reason for palliation

Referral

Treatment

Introduction

The Danish Palliative Care Database (DPD) is a clinical quality database covering all patients referred to and/or in contact with specialized palliative care in a hospice and/or in palliative teams/units in Denmark since 1 January 2010.

DPD is aimed at developing the quality of specialised palliative care in Denmark. Specifically, its aim is to regularly monitor, assess and develop the clinical quality of specialised palliative care in Denmark on the basis of individual patient pathways.

Data is submitted electronically via the Clinical Measurement System (KMS) and cross-batched with the National Patient Register (LPR) as preparation for submission.

More details

Abbreviation
DPD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients referred to specialist palliative services (hospice and palliative teams/units/departments)
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionshuset
Damhaven 12
7100 Vejle
Website - data owner
bit.ly/regionh-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Sofia Møller Kyndesen
T: 20 35 64 26
E: SOFKYN@rkkp.dk
Website - data administrator
bit.ly/dmcg-pal
Website - data administrator
bit.ly/dansk-palliativ-database