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DATA PRESENTATION

The Danish Pancreatic Cancer Database

DATABASE

Primary variables


Cancer diagnosis

Charlson comorbidity index

Chemotherapy

CPR No.

Gender

ICD10 diagnosis code

Metastases

Municipality of residence

Operation - data

Treatment

Tumour data

Tumour localisation

Introduction

The Danish Pancreatic Cancer Database (DPCD) is a national clinical database for patients with pancreatic cancer. The database currently covers data on clinical aspects and treatment to patients with pancreatic duodenal adenocarcinomas (PA) and duodenal and periampullary adenocarcinomas.

The main purpose of the database is to promote and ensure uniform, evidence-based investigation and treatment of patients with duodenal and pancreatic cancer in Denmark. The results of the database are intended to ensure that treatment outcomes in Denmark are in line with international results.

DPCD was established in 2011 since when more than 2880 patient pathways have been notified, with about 860 being reported annually. DPCD is anchored in the Danish Pancreatic Cancer Group (DPCG).

More details

Abbreviation
DPCD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients registered with LPR as having duodenal or pancreatic cancer
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Region of Southern Denmark
Contact data owner
Regionshuset
Damhaven 12
7100 Vejle
Website - data owner
bit.ly/region-of-southern-denmark
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Lene Sveistrup Bengtsson
T: 24 66 47 25
E: LEBENG@rkkp.dk

Website - data administrator
bit.ly/decv-da
Website - data administrator
bit.ly/pancreas-cancer-database