Vi bruger cookies til statistik som en del af vores arbejde for at lave en god hjemmeside. Medmindre du siger "nej tak til cookies", antager vi, at du accepterer vores cookie-politik. For mere information, se vores "cookie-politik".

Du kan også klikke "ja tak til cookies" for at  acceptere vores cookie-politik

DATA PRESENTATION

The Danish national penile cancer quality database

DATABASE

Primary variables


Cardinal symptoms

Chemotherapy

Complications

CPR No.

Date of death

Glans amputation

HPV test

Lymph gland status

Metastases

Operation - data

Surgical treatment

TNM classification

Treatment

Tumour localisation

Vital status

Introduction

The Danish National Penile Cancer database (DaPeCa) is a nationwide clinical quality database containing data about diagnosis and treatment for patients with penile cancers.

DaPeCa is aimed at monitoring the quality of diagnosing and treating penile cancers in Denmark and for all patients with penile cancer in Denmark to be included so as to ensure that the database gives a true picture of the quality of diagnosis and treatment of patients with penile cancer.

The database is very largely based on data notified to the Danish Pathology Register (LRP) or the National Patient Register (LPR), supplemented with selected clinical data entered directly on a data entry module by doctors in highly specialised units.

More details

Abbreviation
DaPeCa
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients with a first diagnosis of penis cancer according to the National Patient Register (LPR) or National Pathology Register (LRP), although penis metastases are excluded
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Inge Bundgaard Øster
T: 21 68 76 68
E: INGOEE@rkkp.dk
Website - data administrator
bit.ly/ducg-da
Website - data administrator
bit.ly/dpc-database