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DATA PRESENTATION

The Danish Prostate Cancer Database

DATABASE

Primary variables


Age

Alcohol consumption

Cardinal symptoms

Charlson comorbidity index

Comorbidity

CPR No.

Date of birth

Gleason score

Height

Metastases

Primary tumour

Prostate volume

pT stage

Sexual function

Smoking

TNM classification

Treatment

Vital status

Weight

Introduction

The Danish Uro-Oncology database (DaProCa) is a nationwide clinical quality database containing data about diagnosis and treatment of patients with prostate cancer.

DaProCas main aim is to improve the quality of diagnosing and treating, including recurrence/progression in, patients with prostate cancer.

DaProCa has been operating nationwide since 2010. Data comes primarily from existing registers: The National Patient Register (LPR) and Danish Pathology Register (LPR). Individual variables have to be collected from the notifying urological and oncological departments by data entry on the KMS (Clinical Measurement System).

More details

Abbreviation
DaProCa
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of patients with a first histologically verified diagnosis of prostate cancer
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Inge Bundgaard Øster
T: 21 68 76 68
E: INGOEE@rkkp.dk
Website - data administrator
bit.ly/ducg-da
Website - data administrator
bit.ly/dpc-database