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DATA PRESENTATION

Danish Renal Cancer Database

DATABASE

Primary variables


Admission/discharge

Age

Blood tests

Comorbidity

CPR No.

Diagnosis

Fuhrman grade

Gender

Leibovich score

Oncological treatment

Operation - data

Postoperative mortality

pT stage

Radiation treatment

Stage

TNM classification

Treatment

Vital status

Introduction

The Danish Renal Cancer database (DaRenCa) is a nationwide clinical quality database that contains information about diagnosis and treatment of patients with renal cancer. The main aim of DaRenCa is to improve the quality of diagnosing and treating patients with renal cancer and to monitor the quality of treatment.

DaRenCa is very largely based on data notified to the Danish Pathology Register (LRP) or the National Patient Register (LPR), supplemented with selected clinical data entered directly on a data entry module by doctors in highly specialised units.

More details

Abbreviation
DaRenCa
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of patients with a first histologically or cytologically verified renal cell carcinoma and surgically treated patients with histologically verified renal cell carcinoma
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
www.rm.dk/om-os/english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Monika Madsen

T: 51 15 41 58
E: MONIMS@rkkp.dk

Website - data administrator
ducg.dk/
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/renal-cancer