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DATA PRESENTATION

Danish Spine Database

DATABASE

Primary variables


Age

Cancer diagnosis

Date of birth

Gender

No. KNAG procedures

No. KNAK procedures

No. KNBC procedures

Vital status

Introduction

The Danish Spine Database (DaRD) is a clinical quality database that contains data about referral patterns to hospitals, use of MR, operation rate, diagnosis of cancer, use of opioids, rehabilitation plans and degree of access to the labour market. This focus has been selected because of greater regional differences in referrals to specialist departments, MR and operation rate, and the use of rehabilitation plans.

DaRD is aimed at improving the treatment of back/spinal patients in Denmark by ensuring proper diagnosis and treatment. The database is also intended to elucidate treatment quality by registering clinical symptoms with respect to the use of medication, imaging diagnostics and operations and to describe inter-sectoral treatment pathways for back patients.

DaRD has been running since 2017 and is based on available register data. The database is structured on the basis of known and applied registration systems such as the National Patient Register (LPR), Health Insurance Register, benefits system, Medicines Register and DREAM.

More details

Abbreviation
DaRD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The database covers all patients presented with a back/spinal diagnosis for medical or surgical treatment in the secondary sector
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Application for data access is sent to the board of the database
  • After approval the application is forwarded to the contact person of the database
  • The contact person controls the application
  • If the application is complete the applicant must accept the terms of extradition of data (a written acceptance is sent via e-mail to the contact person)
  • The application is sent to data manager
  • Approval and extradition of data
  • within 30 days after data delivery the applicant must control the data extraction and afterwards it should be deleted

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Esra Öztoprak
T: 21 68 69 88
E: ESROEZ@rkkp.dk

Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/dansk-rygdatabase