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DATA PRESENTATION

Danish Shoulder Arthroplasty Register

DATABASE

Primary variables


AC joint resection

Activity level

Antibiotic prophylaxis

Biceps tenodesis

Biceps tenotomy

Complications

CPR No.

Cuff construction

Current injury

Follow-up data

Glenoid anchoring

ICD10 diagnosis code

Operation - data

Operation - side

Previous operation on same shoulder

Prosthesis - status

Prosthesis type

Re-operation

Stem

Subacromial decompression

Western Ontario Osteoarthritis of the Shoulder Index

Introduction

The Danish Shoulder Arthroplasty Register (DSR) is a national clinical quality database comprising all patients who have had shoulder arthroplasty at an orthopaedic department in Denmark which undertakes this kind of operation. The aim of DSR is to develop the quality of operations on shoulder arthroplasty in Denmark.

Recording of data started in 2004. The first year was regarded as the pilot for the register during which departments could voluntarily submit data. From 1 January 2005, all departments undertaking shoulder arthroplasty were encouraged to submit reports to the register and in June 2006 the Danish Health Authority issued an Order requiring public and private hospitals to report data to approved clinical quality databases, including DSR.

Data from reporting departments is entered via KMS (Clinical Measurement System) and cross-batched with the National Patient Register (LPR).

More details

Abbreviation
DSR
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients who have had primary total or partial shoulder arthroplasty or who have had a revision arthroplasty
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Anne Haagen Hjelm
T: 21 68 68 35
E: ANNHJE@rkkp.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/skulderalloplastik-register