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DATA PRESENTATION

Danish Quality Database for Colon Cancer Screening

DATABASE

Primary variables


Adenoma size

Age

Coloscopy - data

CPR No.

Findings

Gender

Grading

Intestinal cancer stage

Invitation sent

Laboratory data

Region

Reminder

Result

Sigmoidoscopy data

Tumour localisation

Vital status

Introduction

The Danish Quality Database for Colon Cancer Screening (DTS) includes data on participation, screening results, follow-up examinations – colcoscopy, colcoscopy results, etc. The aim of DTS is to follow up on the quality and outcomes of the colon cancer screening program which was rolled out nationally in the spring of 2014.

The screening program is open to all Danish citizens aged 50-74. The program consists of an immunologically-based faecal blood test (IFOBT), with positive results followed up with colcoscopy. DTS is based on data from the Regions' common Invitation & Administration Module (IAM), which gets data from the National Patient Register (LPR) and the National Pathology Register (LPR).

More details

Abbreviation
DTS
Type
Nationwide clinical quality database
Purpose
Clinical quality, Scientific research

Collection Period

Collection Period
Coverage
Nationwide
Population
The population covers citizens aged between 50-74 years invited to participate in the bowel cancer screening program
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Ane Birgitte Telén Andersen
T: 29 45 94 15
E: ANEBBA@rkkp.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/dansk-tarmkraftscreening-database-dts