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DATA PRESENTATION

The Danish Adult Diabetes Registry

DATABASE

Primary variables


ACE score (Addenbrooke’s Cognitive Examination)

Age

Albumin separation

Antihypertensive treatment

Blood pressure

Blood sugar

BMI

Cholesterol

CPR No.

Current medicinal treatment

Diabetes duration

Diabetes type

Dyslipidemia

Eye examination

Foot examination

Gender

HbA1c

Height

Insulin

Oral antidiabetics

Smoking

Triglycerides

Weight


Introduction

The Danish Adult Diabetes Registry (DVDD) is a clinical quality database and part of the Danish Diabetes Database. The Danish Diabetes Database contains three separate databases, the DVDD registry on the quality of treatment and follow-up for adult diabetic patients in the hospital sector but also in general practice.

All patients (also those newly diagnosed, newly referred, re-referred, no-shows) are reported to DVDD. A status date is set up for each patient - the date for an annual status report in the database on when the patient has most recently had various relevant examinations.

The aim of DVDD is to provide constantly monitoring so as to improve the quality of prevention, treatment and care of all adult diabetic patients in Denmark in the hospital sector and in general practice.

More details

Abbreviation
DVDD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Population
The population consists of all patients permanently resident in Denmark with diabetes regardless of whether they are being actively treated on their status date (i.e. also applies to patients newly diagnosed, newly referred, re-referrals, no shows). This applies to patients in the primary and secondary sectors
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Annette Odby
T: 21 68 75 70
E: ANNODB@rkkp.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/voksendiabetes