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DATA PRESENTATION

Danish Register of chronic obstructive pulmonary disease

DATABASE

Primary variables


30 day mortality

BMI

Diagnosis

Dyspnoea

FEV1

ICD10 diagnosis code

Inhalation treatment

Lung function

Non-invasive ventilation

Readmission

Rehabilitation

Smoking

Treatment

Treatment with corticosteroids

Treatment with LAMA/LABA

Urged to stop smoking

Introduction

The Danish Register of Chronic Obstructive Pulmonary Disease (DrKOL) is a national quality database covering information about patients with chronic obstructive pulmonary disease (COPD) either associated with hospital outpatients or COPD patients hospitalised due to acute exacerbation. The aim of DrKOL is to monitor and develop the quality of treatment of individuals aged over 30 with COPD.

All pulmonary and medical outpatient departments treating patients with COPD are required to submit data to DrKOL by notifying SKS procedure codes to LPR. Data reporting also covers patients being treated at home, such as those requiring oxygen. Data on COPD patients hospitalised due to acute exacerbation comes from all hospital departments treating them.

Data comes from the National Patient Register (LPR) and the General Medical Database (DAMD), together with data from the CPR Register and regional prescription data.

More details

Abbreviation
DrKOL
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of COPD patients aged over 30 associated with hospital outpatients (outpatient COPD patients) and COPD patients aged over 30 hospitalised due to acute exacerbation
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
www.rm.dk/om-os/english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Lene Korshøj
T: 29 65 66 60
E: LENKOR@rkkp.dk

Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/kol