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DATA PRESENTATION

The Danish National Database for Asthma

DATABASE

Primary variables


Age

CPR No.

Date of birth

Diagnosis

FEV1

FVC reading

Gender

ICD-10 diagnosis codes

Procedure code

Introduction

The Database for Asthma is a new national quality database that contains information about the treatment of children and adults with asthma regardless of whether they are being treated in hospital and/or general practice.

The database aims to monitor and develop the quality of treatment of asthma in Denmark and in the long term increase the follow-up of the individual with asthma, to ensure less illness and better quality of life.

The database was set up on 1 January 2015. All pulmonary and medical outpatient departments treating patients with asthma are required to submit data to the Database for Asthma in Primary and Secondary Care in Denmark by notifying SKS procedure codes to the National Patient Register (LPR). This also includes paediatric departments treating children and adolescents. Initially, the database is only based on data extracts from LPR and so data is 100% complete.

More details

Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all asthma patients in Denmark
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
www.rm.dk/om-os/english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Lene Korshøj
T: 29 65 66 60
E: LENKOR@rkkp.dk

Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/databasen-for-astma-i-danmark