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DATA PRESENTATION

Database for Atrial Fibriliation

DATABASE

Primary variables

 

List of variables not avaliable for download

Introduction

The Database for Atrial Fibrillation in Denmark (AFDK) is a clinical quality database that contains data on patients with atrial fibrillation from all hospitals and general practice in Denmark.
AFDK is aimed at ensuring high quality treatment and care and harmonising treatment for patients with atrial fibrillation.

AFDK is anchored in the Danish Cardiology Society (DCS). The database seeks to ensure that relevant patients are offered treatment for the right indication and to increase compliance with clinical guidelines. The database includes hospital and general medical practice so as to promote coordination between sectors and ensure that handover between sectors can be done without loss of quality.

Data is reported via patient administration systems to the National Patient Register (LPR) in the form of SKS codes and cross-batched with data from the The Central Person Registry (CPR) and the prescription database.

More details

Abbreviation
AFDK
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises patients with prevalent and incident atrial fibrillation
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
www.rm.dk/om-os/english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Anne Nakano Jensen
T: 21 68 76 88
E: ANNJES@rkkp.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/atrieflimren-i-danmark