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DATA PRESENTATION

The Danish Database for Hepatitis B and C

DATABASE

Primary variables


Age

CPR No.

Diagnosis

Diagnostic method

Gender

Genotype

Hepatitis B/C

Infection route

Liver biopsy

Origin

Treating hospital/department

 

List of variables not avaliable for download

Introduction

The Danish Database for Hepatitis B and C (DANHEP) is a nationwide clinical database that holds data on patients with chronic hepatitis B or C in a hospital department in Denmark. Patients under 15 are not included in the database.

The aim of DANHEP is to improve diagnostics, follow-up and treatment for patients referred to hospital with chronic hepatitis B and C in Denmark so as to ensure quality enhancements for patients and compliance with the current guidelines.

DANHEP is based on a collaboration between 16 departments in infection treatment, gastroenterology and hepatology.

More details

Abbreviation
DANHEP
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises patients aged >15 with chronic viral hepatitis B and C referred to hospital in Denmark
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Application for data access is sent to the board of the database
  • After approval the application is forwarded to the contact person of the database
  • The contact person controls the application
  • If the application is complete the applicant must accept the terms of extradition of data (a written acceptance is sent via e-mail to the contact person)
  • The application is sent to data manager
  • Approval and extradition of data
  • within 30 days after data delivery the applicant must control the data extraction and afterwards it should be deleted

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Nina Weis
T: 36 32 35 14
E: nina@weis@regionh.dk
Website - data administrator
www.rkkp-dokumentation.dk/Public/Databases.aspx?db=102&version=0