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DATA PRESENTATION

The Neonatal Screening Biobank

DATABASE

Primary variables


Birth weight

Blood tests

Child's date of birth

Child's name

Duration of pregnancy

Mother's CPR No.

Mother's name

 

List of variables not avaliable for download

Introduction

The Neonatal Screenings Biobank (DNSB) is a biobank run by Statens Serum Institute, which holds blood samples from practically all babies born since 1982. All new born infants in Denmark are examined for a range of serious diseases by analysing a blood sample dried on special filter paper (PKU blood test).

The aim of the PKU test is mainly to screen an infant for a range of serious diseases but it is also used in investigations if the child develops a disease in later life, or for scientific research. 

Parents will need to register the child with the Danish Health Data Authority's Tissue Utilisation Register If they do not wish the sample to be used for subsequent scientific research.

More details

Abbreviation
DNSB
Type
Health monitoring
Purpose
Scientific research, Screening

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises all newly born infants who have had a PKU test
Database Categories

Contact information

Data owner
Danish Health Data Authority
Contact data owner
Ørestads Boulevard 5
2300 København S
Website - data owner
sundhedsdatastyrelsen.dk/da
Data administrator
Statens Serum Institut
Contact data administrator

Center of neonatal screening
T: 32 68 36 52
E: biokemi@ssi.dk

Website - data administrator
www.ssi.dk/Diagnostik/Center%20for%20Neonatal%20Screening/Den%20Neonatale%20Screenings%20Biobank.aspx