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DATA PRESENTATION

The National Diabetes Register

DATABASE

Primary variables


CPR No.

Date of birth

Date of compliance with inclusion criteria

Date of death

Date of inclusion in the register

Gender

Municipality of residence

Introduction

The National Diabetes Register (NDR) contains data on practically all individuals diagnosed with diabetes in Denmark, making it possible to follow the major trends for incidence, prevalence and mortality for many years.

NDR records indications as a result of diabetes and meeting one of several defined criteria indicating that a patient is suffering from diabetes is recorded in the NDR. The indicators are identified by combining data from pre-existing registers - the Danish National Patient Registry (LPR), Danish National Health Insurance Service Registry, Danish Medicines Agency's Medical Statistics Register and the CPR Registry (CPR). The registry also includes information about CPR number, date of birth, gender and any date of death.

It should be noted that NDR only contains information about diabetics who have very probably had their condition diagnosed. Since it often takes a long time for diabetes to be identified, a larger number of patients must therefore be expected to have diabetes but not to have it diagnosed as yet.

More details

Abbreviation
NDR
Type
Nationwide clinical quality database
Purpose
Scientific research

Collection Period

Collection Period
Coverage
Nationwide
Population
The population includes individuals registered with indications for diabetes since 1990
Database Categories

Application requirements

Scientific Services at The Danish Health Data Authority

Scientific Services (Danish: Forskerservice) at The Danish Health Data Authority is a Joint port of access to pseudo anonymized data that the Danish Health Data Authority are responsible for. Scientific Services works to support health research in Denmark, by providing access to, as well as advising on use of the National Danish health data.

Via Scientific Service researchers can obtain access to these data, either in a safe environment on the Research Mashine (Danish: Forskermaskinen) or by ordering data extractions that are delivered directly to the researcher.

To apply for access to data, a list of requirements must be obtained. A Project description and an extension description must be attached, containing information about which registries, variables, population and period that are applied for. Furthermore, the Danish Data Protection Agency (Danish: Datatilsynet) must approve the research project, and the approval should be attached to the application. If the research project includes direct contact with humans or human biological material, The National Committee on Health Research Ethics must also approve the project.

Application process

  • Use Scientific Services (Danish: Forskerservice) as application portal
  • Initial case processing
  • Preliminary approval of the permissions
  • Bidding
  • Acceptance of data access
  • Programming
  • Data access via the Research Machine (Danish: Forskermaskinen)

 

Legislation

As a public authority and data processor The Danish Health Data Authority are subject to Danish laws for treatment of personal data, that should secure that the Danish health data are treated right. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven).

Contact information

Data owner
Danish Health Data Authority
Contact data owner
Ørestads Boulevard 5
2300 København S
Website - data owner
sundhedsdatastyrelsen.dk/da
Data administrator
Danish Health Data Authority
Contact data administrator
Katrine Facius
T: 32 68 95 51
E: kafa@sundhedsdata.dk
Website - data administrator
www.esundhed.dk/dokumentation/Registre/Sider/Register.aspx