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DATA PRESENTATION

In Vitro Fertilisation register

DATABASE

Primary variables


Egg extraction

Fertilisation method

Pregnancy

Reason for childlessness

Receipt of donor eggs

Receipt of donor sperm

Stimulation

Storage - defrosted eggs

Storage of fresh eggs or freezing

Introduction

The In Vitro Fertilisation Register (IVF) contains data on treatment pathways from public and private fertility clinics in Denmark and reports include data on the reasons for childlessness, stimulation, egg extraction, fertilisation method, egg storage and whether pregnancy is achieved.

The register was based on paper reports from 1994 to 2005, but since 2006 the register has been based on electonic reporting to the Danish Health Authority's SEI system.

More details

Abbreviation
IVF
Type
Health monitoring
Purpose
Scientific Research

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of women with Danish CPR numbers who have received IVF treatment at a Danish fertility clinic
Database Categories

Application requirements

Scientific Services at The Danish Health Data Authority

Scientific Services (Danish: Forskerservice) at The Danish Health Data Authority is a Joint port of access to pseudo anonymized data that the Danish Health Data Authority are responsible for. Scientific Services works to support health research in Denmark, by providing access to, as well as advising on use of the National Danish health data.

Via Scientific Service researchers can obtain access to these data, either in a safe environment on the Research Mashine (Danish: Forskermaskinen) or by ordering data extractions that are delivered directly to the researcher.

To apply for access to data, a list of requirements must be obtained. A Project description and an extension description must be attached, containing information about which registries, variables, population and period that are applied for. Furthermore, the Danish Data Protection Agency (Danish: Datatilsynet) must approve the research project, and the approval should be attached to the application. If the research project includes direct contact with humans or human biological material, The National Committee on Health Research Ethics must also approve the project.

Application process

  • Use Scientific Services (Danish: Forskerservice) as application portal
  • Initial case processing
  • Preliminary approval of the permissions
  • Bidding
  • Acceptance of data access
  • Programming
  • Data access via the Research Machine (Danish: Forskermaskinen)

 

Legislation

As a public authority and data processor The Danish Health Data Authority are subject to Danish laws for treatment of personal data, that should secure that the Danish health data are treated right. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven).

Contact information

Data owner
Danish Health Data Authority
Contact data owner
Ørestads Boulevard 5
2300 København S
Website - data owner
sundhedsdatastyrelsen.dk/da
Data administrator
Danish Health Data Authority
Contact data administrator
Pia Buys Petersen
T: 32 68 90 78
E: pibp@sundhedsdata.dk
Website - data administrator
sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/graviditet-foedsler-og-boern/ivf-registeret