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DATA PRESENTATION

Danish Non-melanoma Skin Cancer Dermatology Database

DATABASE

Primary variables


Clinical diagnosis

CPR No.

Metastases

Skin cancer history

Treatment

Tumour data

Tumour localisation

Tumour size

Introduction

The Clinical Database for Non-melanoma Skin Cancer (NMSC) is a nationwide clinical quality database that covers treatment procedures and control of non-melanoma skin cancer in specialist dermatology practice and the plan is to include all other units that undertake treatment and control of non-melanoma skin cancer. The aim of NMSC is to ensure the quality of treatment of non-melanoma skin cancer in Denmark.

NMSC is required to report to the Cancer Register. The NMSC database also reports directly to the Cancer Registry so as to avoid the personnel making the reports having to make unnecessary duplicate entries into multiple registers. Data is also captured from the KVIS project (Quality development in specialist practice) together with data from the Pathology Register in order to calculate coverage.

The database is anchored in the Danish Dermatology Society (DDS) and the Danish Dermatologists' Organisation.

More details

Abbreviation
NMSC
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises patients treated in specialist practice with a basal cell carcinoma (BCC), squamous cell carcinoma (SCC), morbus (mb.), Bowen and keratoacanthoma
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
www.rm.dk/om-os/english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Monika Madsen
T: 51 15 41 58
E: MONIMS@rkkp.dk
Website - data administrator
nonmelanom.dk/
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/klinisk-database-for-non-melanom-hudkraft