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DATA PRESENTATION

National Quality Registration for Visual Impairment

DATABASE

Primary variables


Eye Disorder

Processing time

Vision

Waiting time


 

List of variables not avaliable for download

Introduction

The National Quality Registration of Vision Impairment (WebSyn) is a clinical quality database that contains data about rehabilitation of persons with permanent eye disease and an eye restraint (visus, vision) reduced to one third of normal vision or less.

The purpose of WebSyn is to elucidate and contribute to quality improvement of health care efforts within the group of patients with strongly impaired vision. Including providing feedback to vision institutions and service commissioning bodies so as to optimise quality and rehabilitation measures for vision institutions' own patients and to give the regions and municipalities a common overview of, and basis for, dialogue on uniformity in vision rehabilitation measures.

More details

Abbreviation
WebSyn
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises individuals in rehabilitation with a permanent eye condition, with remaining vision reduced to 1/3 of normal sight or less
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Application for data access is sent to the board of the database
  • After approval the application is forwarded to the contact person of the database
  • The contact person controls the application
  • If the application is complete the applicant must accept the terms of extradition of data (a written acceptance is sent via e-mail to the contact person)
  • The application is sent to data manager
  • Approval and extradition of data
  • within 30 days after data delivery the applicant must control the data extraction and afterwards it should be deleted

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Birgitte Rühmann
T: 26 34 78 09
E: BIRRUH@rkkp.dk
Website - data administrator
websyn.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/landsdakkende-kvalitetsregistrering-af-synshandikap-websyn