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DATA PRESENTATION

The Danish Registry of Diabetic Retinopathy

DATABASE

Primary variables


Age

CPR No.

Date of eye screening

Diabetes type

First name(s)

Gender

Indication for screening

Previous eye surgery

Retinal examination

Surname

Vision - strength

Introduction

The Danish Registry of Diabetic Retinopathy (DiaBase) is a clinical quality database and part of the Danish Diabetes Database. The Danish Diabetes Database includes three separate databases, with DiaBase describing the quality of screening services for diabetic eye complications in the hospital sector and in specialist practice.

The aim of DiaBase is to monitor the quality of screening for diabetic eye complications and their development amongst the diabetic population so as to constantly improve the quality of checks and hence treatment of diabetic patients.

The organisational units carrying out screening for diabetic retinopathy submit reports. The local /regional organisation of screening for diabetic retinopathy varies, so data-reporting units may therefore be eye departments /eye outpatient departments in the hospital sector and ophthalmologists in private practice.

More details

Abbreviation
DiaBase
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients aged over 18 with permanent residence in Denmark who have had an eye examination as a part of their diabetes control. Eye examinations of children and adolescents with diabetes are included in the childhood and adolescent diabetes register and so are not registered in DiaBase
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
www.rm.dk/om-os/english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Annette Odby
T: 21 68 75 70
E: ANNODB@rkkp.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/Landsdaekkende-klinisk-kvalitetsdatabase-for-screening-af-diabetisk-retinopati-og-maculopati