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DATA PRESENTATION

The Danish Pathology Register

DATABASE

Primary variables


CPR No.

Diagnosis

Examination methods

Examination procedures

Material time examined

Material type

Mother's CPR No.

Performing body, department and/or pathologist

Introduction

The Danish Pathology Register (LRP) is a national register which contains detailed information about pathological examination of tissue and cell samples conducted in the hospital and in the primary sector in Denmark.

LRP was established in 1997 as a supplement to other disease registration for the purpose of using data in the register for prevention and research. In addition, LPR's data is used fx also as a basis for analyzes of resource utilization in hospital treatment and in addition to data in The Cause of Death Registry and the IVF Register. LRP is updated daily and includes data from 1970 but since the register only became national in 1997, the data is not complete before that date.

More details

Abbreviation
LRP
Type
Health monitoring
Purpose
Scientific Research

Collection Period

Collection Period
Coverage
Nationwide
Population
The Danish Pathology Register holds data on individuals treated in the health service and who have had samples sent for anatomic/pathological testing
Database Categories

Application requirements

Scientific Services at The Danish Health Data Authority

Scientific Services (Danish: Forskerservice) at The Danish Health Data Authority is a Joint port of access to pseudo anonymized data that the Danish Health Data Authority are responsible for. Scientific Services works to support health research in Denmark, by providing access to, as well as advising on use of the National Danish health data.

Via Scientific Service researchers can obtain access to these data, either in a safe environment on the Research Mashine (Danish: Forskermaskinen) or by ordering data extractions that are delivered directly to the researcher.

To apply for access to data, a list of requirements must be obtained. A Project description and an extension description must be attached, containing information about which registries, variables, population and period that are applied for. Furthermore, the Danish Data Protection Agency (Danish: Datatilsynet) must approve the research project, and the approval should be attached to the application. If the research project includes direct contact with humans or human biological material, The National Committee on Health Research Ethics must also approve the project.

Application process

  • Use Scientific Services (Danish: Forskerservice) as application portal
  • Initial case processing
  • Preliminary approval of the permissions
  • Bidding
  • Acceptance of data access
  • Programming
  • Data access via the Research Machine (Danish: Forskermaskinen)

 

Legislation

As a public authority and data processor The Danish Health Data Authority are subject to Danish laws for treatment of personal data, that should secure that the Danish health data are treated right. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven).

Contact information

Data owner
Danish Health Data Authority
Contact data owner
Ørestads Boulevard 5
2300 København S
Website - data owner
sundhedsdatastyrelsen.dk/da
Data administrator
Danish Health Data Authority
Contact data administrator
Milan Fjaber
T: 32 68 51 43
E: mifa@ssi.dk
Website - data administrator
sundhedsdatastyrelsen.dk/da/registre-og-services/om-de-nationale-sundhedsregistre/doedsaarsager-og-biologisk-materiale/patologiregisteret