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DATA PRESENTATION

Danish Vascular Registry

DATABASE

Primary variables


Age

Alcohol consumption

Amputation

Anaesthesia

Aneurysm data

ASA Physical Status Classification System

Blood pressure

BMI

Carotid operation

Cause of death

Comorbidity

Complications

CPR No.

Date of death

Examination method

Extremities status

Gender

Height

ICD10 diagnosis code

Modified Ranking Scale score

Operation - data

Peripheral blood pressure

Previous vascular surgery

Smoking

Stenosis level

Treating hospital /department

Treatment indication

Vital status

Weight

Introduction

The Danish Vascular Registry (KAR) is a national clinical quality database that contains information about cardiac surgery in Denmark. The aim of KAR is medical quality assurance in healthcare by way of monitoring critical objective and reproducible indicators for known parameters and complications in vascular surgery.

Procedures include surgery and endovascular treatment. Primary cardiological interventions relate to abdominal aortal aneurysms, infrainguinal bypass surgery and carotid thromboendarterectomy but the registry also includes information about other vascular surgery, including additional interventions that are not included in standard quality follow-up but which provide documentation for repeat operations, revisions, etc.

KAR covers operations on patients with Danish CPR numbers in cardiovascular units in Denmark. Data is reported via the Clinical Measurement System (KMS), with additional data from the National Patient Register (LPR) and CPR register.

More details

Abbreviation
KAR
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The database covers operations on patients with Danish CPR numbers in cardiovascular units in Denmark. All arterial surgery is included together with advanced venous surgery. At more than 80% of patient documentation, the most frequent group of patients is for peripheral atherosclerosis and aneurysms (outside the heart and brain)
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Annette Ingeman
T: 21 68 75 83
E: ANNING@rkkp.dk
Website - data administrator
karbase.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/landsregistret-karbase