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DATA PRESENTATION

National Database for Sleep Apnoea

DATABASE

Primary variables


AHI count

Apnoea diagnosis

Comorbidity

CPAP compliance rate

Diagnostic tests

Epworth Sleepiness Scale (ESS) reading

Gender

Oximetry

Oxygen desaturation index (ODI) reading

Polysomnography

Treatment

Treatment

Treatment indication

Introduction

National Database for Sleep Apnoea (NDOSA) is a national clinical quality database which contains data relating to sleep apnea and obesity-related hypoventilation in Denmark.

NDOSA is aimed at documenting the clinical quality of diagnosis, examinations, treatment and follow-up. This gives a picture of the whole process for patients with obstructive sleep apnoea and obesity-related hyperventilation so as to ensure good, uniform clinical standards with respect to national and international guidelines.

Sleep-related breathing disturbances cover Obstructive Sleep Apnoea (OSA), Central Sleep Apnoea, Cheyne-Stokes respiration and hypoventilation, including obesity-related hypoventilation.

The database has been operating nationally since 2008 and is based on data from the National Patient Register (LPR), so the data is 100% complete.

More details

Abbreviation
NDOSA
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population consists of all patients diagnosed with sleep apnoea admitted to, or who have been in outpatient contact with, a hospital department
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
The Capital Region of Denmark
Contact data owner
Regionsgården 
Kongens vænge 2
3400 Hillerød
Website - data owner
www.regionh.dk/english/Pages/default.aspx
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator
Thor Schmidt
T: 29 64 69 57
E: THORSC@rkkp.dk
Website - data administrator
www.rkkp.dk/om-rkkp/de-kliniske-kvalitetsdatabaser/national-database-for-sovnapno-ndosa