The Danish Cerebral Palsy Follow-up Program (CPOP) is a clinical quality database for children and adolescents with cerebral paresis or cerebral paresis-like conditions. The overall aim of CPOP is to monitor and follow the quality of healthcare services and follow-up and to limit and/or prevent secondary sequela.
The database served as a regional clinical quality database in Region Southern Denmark between 2010-2013 and is now being established as a national clinical quality database. Data comes from the country's paediatric and paediatric orthopaedic surgical departments and from physiotherapists and ergotherapists employed in regional, municipal and private organisations.
- Nationwide clinical quality database
- Scientific Research
- The population consists of children and adolescents between 0-15 years-old diagnosed with cerebral paresis and children between 0-5 years with cerebral paresis-like symptoms
- Database Categories
Children and adolecents
The Regional Clinical Quality Databases
Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.
Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.
Furthermore, The Danish Data Protection Agency must approve the project.
- Apply via research access (Danish: forskeradgang), an online application system
- Submit the protocol to The Danish Clinical Registries (RKKP)
- RKKP registers the application
- The application is forwarded to the relevant clinical database
- Potential dialog about adjustment to the protocol
- Approval and extradition of data (expected 6 months after application)
The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.
- Data owner
- The Capital Region of Denmark
- Contact data owner
Kongens vænge 2
- Website - data owner
- Data administrator
- The Danish Clinical Registries (RKKP)
- Contact data administrator
- Annette Odby
T: 21 68 75 70
- Website - data administrator