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DATA PRESENTATION

Organ Donation Database

DATABASE

Primary variables


Donors

Refusal

 

List of variables not avaliable for download

Introduction

The Organ Donation Database (ODD) is a national clinical quality database which contains data relating to all patients who die in an intensive care unit. The purpose of ODD is to monitor and improve the quality of professional healthcare in this field with the aim to achieve optimal utilization of the available organ potential, taking into account the attitude to organ donation of the deceased and/or the next of kin.

ODD is approved by the Danish Health Authority and is anchored in the Danish Center for Organ Donation. In February 2011, there was a parliamentary decision to adopt national targets for numbers of organ donors, including national targets for departmental awareness of organ donation and numbers of cases where relatives refuse organ donation. On the basis of this parliamentary resolution, the Parliamentary Healthcare Committee receives an annual briefing on the two national targets.

Data derives mainly from the registration sheets completed for all patients who die in an intensive department, which are then reported to the National Patient Register (LPR). Data also comes from the CPR register and Scandiatransplant.

More details

Abbreviation
ODD
Type
Nationwide clinical quality database
Purpose
Clinical quality

Collection Period

Collection Period
Coverage
Nationwide
Population
The population comprises all deaths in the country's intensive departments
Database Categories

Application requirements

The Regional Clinical Quality Databases

Data about clinical quality are collected with the purpose of monitoring and raising the quality of patient treatment in the Danish health-care system. These data can, as well as all other public registers, be made accessible for research projects based on systematic protocols and approved according to the relevant legislations.

Applying for access to data from a regional clinical database requires a list of demands to be obtained. A project description should be attached containing a description of the project explaining the rationale, purpose, methods, budget, publication plan etc.

Furthermore, The Danish Data Protection Agency must approve the project.

Application process

  • Apply via research access (Danish: forskeradgang), an online application system
  • Submit the protocol to The Danish Clinical Registries (RKKP)
  • RKKP registers the application
  • The application is forwarded to the relevant clinical database
  • Potential dialog about adjustment to the protocol
  • Approval and extradition of data (expected 6 months after application)

 

Legislation

The Regional clinical quality databases subject to rules for treatment of personal data, that should secure high quality of patient treatment in Denmark. These legislations include The Act on Processing of Personal Data (Danish: Persondataloven) and The Danish Act of Health (Danish: Sundhedloven). These legislations ensure that data access is limited to relevant purposes.

Contact information

Data owner
Central Denmark Region
Contact data owner
Regionshuset Viborg
Skottenborg 26
8800 Viborg 
Website - data owner
bit.ly/rm-english
Data administrator
The Danish Clinical Registries (RKKP)
Contact data administrator

Birgitte Rühmann
T: 26 34 78 09
E: BIRRUH@rkkp.dk

Website - data administrator
bit.ly/danish-organ-donation-database
Website - data administrator
bit.ly/rkkp-organdonationsdatabasen